Celebrating Miracles & Milestones: Our Journey Continues

Date: Thursday, June 23 – Saturday, June 25, 2016
Location: Hilton Oak Brook Hills Resort

Thank you for your interest in our 2016 Monogenic Diabetes Family Forum, Celebrating Miracles & Milestones: Our Journey Continues. We look forward to welcoming you. Here you will find more information regarding the forum, including registration, agenda, child care information and any updates to the program. We encourage you to keep this page bookmarked for your future reference!


See the complete conference guide here 

Registration

Agenda

Forum Activities

Travel, Accommodations and Venue

Attractions

Child Care (“Kamp Kovler”) Information

Photography, Film and Publicity

Faculty and Presenters

Faculty Disclosure

Sponsorship

Thank You

Registration

The family forum fee is $95 per individual or $175 per family. A family includes two or more individuals. All attendees must pay online at the time of registration.

The registration fee includes:

  • Participation in two-day forum with leading international experts
  • Forum materials and activities, including portrait, video story booth, research sessions, and more (see “Forum Activities”)
  • Most forum meals
  • Zoo admission and celebration dinner
  • Complimentary self-park
  • Complimentary child care

If your family needs to make alternative payment arrangements or requires financial assistance, please contact Peggy Hasenauer directly at 773-834-4789 or e-mail peggy.hasenauer@uchospitals.edu to discuss confidentially.

Agenda


Thursday, Jun 23

10:00 a.m.
Conference Check-in begins
(Kovler Welcome Desk located at the east foyer of the conference center)

1:00 p.m.
Kamp Kovler Check-in (optional)
(Medinah Room located on the lower level)

1:30 p.m. 
Welcome and Team Introduction (Ballroom F)
Louis H. Philipson, MD, PhD, FACP

1:45 p.m.
Where Are We Now? 
(Ballroom F)
Siri Atma W. Greeley, MD, PhD
Rochelle N. Naylor, MD
Louis H. Philipson, MD, PhD, FACP

2:30 – 3:15 p.m.
Breakout Session #1

Attendees may attend one of two breakout sessions during this block:
(A) Medication Management / Sick Day Care (Ballroom G-H)
Siri Atma W. Greeley, MD, PhD
Rochelle N. Naylor, MD

(B) Optimizing Developmental, Cognitive and Behavioral Supports for Educational Success: A Proactive Strategy (Ballroom F)
Michael E. Msall, MD
Megan Scott, PhD

3:20 – 4:05 p.m.
Breakout Session #2

Attendees may attend one of two breakout sessions during this block:
(A) Medication Management / Sick Day Care (Ballroom G-H)
Siri Atma W. Greeley, MD, PhD
Rochelle N. Naylor, MD

(B) Optimizing Developmental, Cognitive and Behavioral Supports for Educational Success: A Proactive Strategy (Ballroom F)
Michael E. Msall, MD
Megan Scott, PhD

4:15 – 5:30 p.m.
Journey to a Miracle: Freedom from Insulin
 (Ballroom F)
Documentary screening with introduction by Laurie Jaffe

5:45 p.m.
Kamp Kovler closes
(Medinah Room located on the lower level)

6:00 – 8:00 p.m.
Welcome Dinner
(Marquis Tent – take the stairs by ballroom G to the lower level)
Join us in the big top as we welcome you to Celebrating Miracles and Milestones: The Greatest Show on Earth! Enjoy carnival games, face painters, jugglers, balloon animals and plenty of other surprises in this carnival-themed extravaganza. Our evening will end with a special performance from the world-famous, Chicago-based Jesse White Tumblers.

This special evening is brought to you by the Zellmer Wellness Foundation.

Optional forum activities including research sessions, video story booth, portrait sessions and more are available throughout the day from 12 – 5 p.m. (see “Forum Activities” for more information).


Friday, Jun 24

7:30 – 8:30 a.m. (Ballroom G-J)
Breakfast buffet for all forum attendees, children, and families

8:30 a.m. 
Kamp Kovler Check-In (Medinah Room located on the lower level)

9:00 a.m.
Opening Remarks (Ballroom F)
Louis H. Philipson, MD, PhD, FACP

9:15 – 9:45 a.m.
The Story Continues (Ballroom F)
Graeme I. Bell, PhD

9:45 – 10:15 a.m.
Genetics (Ballroom F)
Amy Knight Johnson, MS, CGC
May Sanyoura, PhD

10:15 a.m. – 10:30 a.m.
Break

10:30 – 11:10 a.m.
Breakout Session #1
Attendees may attend one of three breakout sessions during this block:
(A) MODY Gene: GCK (Ballroom G)
Rochelle N. Naylor, MD
(B) MODY Genes: KCNJ11/ABCC8 (Ballroom F)
Siri Atma W. Greeley, MD, PhD
(C) Sleep & Monogenic Diabetes (Ballroom H)
Dorit Koren, MD

11:15 – 11:55 a.m.
Breakout Session #2

Attendees may attend one of three breakout sessions during this block:
(A) MODY Genes: HNF1a / HNF4a (Ballroom G)
Rochelle N. Naylor, MD
(B) Neonatal Diabetes Genes: 6q24 (Ballroom F)
Siri Atma W. Greeley, MD, PhD
(C) Sleep & Monogenic Diabetes (Ballroom H)
Dorit Koren, MD

12:00 p.m.
Kamp Kovler closes 
(Medinah Room on the lower level)

12:00 – 1:00 p.m.
Lunch buffet for all conference attendees, children and families (Ballroom G-J)

1:00 – 1:15 p.m.
Kamp Kovler Check-in
 (Medinah Room on the lower level)

1:15 – 2:05 p.m.
Breakout Session #3

Attendees may attend one of three breakout sessions:
(A) Coping / Stress (Ballroom F)
Edwin Cook, MD
Tina N. Drossos, PhD
(B) MODY Genes: GATA6 / PDX1 / INS (Ballroom H)
Siri Atma W. Greeley, MD, PhD
(C) Tools & Technology (Ballroom G)
Rochelle N. Naylor, MD
Louis H. Philipson, MD, PhD, FACP

2:10 – 3:00 p.m.
Breakout Session #4

Attendees may attend one of three breakout sessions during this block:
(A) Coping / Stress (Ballroom F)
Edwin Cook, MD
Tina N. Drossos, PhD
(B) Accommodations / School issues / 504 plans / IEPs (Ballroom H)
Amy Hess-Fischl, MS, RD, LDN, BC-ADM, CDE
Reshma Shah, MD
(C) Tools & Technology (Ballroom G or H)
Rochelle N. Naylor, MD
Louis H. Philipson, MD, PhD, FACP

3:05 – 3:55 p.m.
Breakout Session #5

Attendees may attend one of two breakout sessions during this block:
(A) MODY Q&A (Ballroom G)
Louis H. Philipson, MD, PhD, FACP
(B) Neonatal Q&A (Ballroom F)
Siri Atma W. Greeley, MD, PhD

4:15 p.m.
Kamp Kovler closes
(Medinah Room located on the lower level)

4:00 – 6:30 p.m.
We’re Going to the Zoo – How About You?
(Brookfield Zoo)
Enjoy an afternoon at the Brookfield Zoo on your own before the Celebration Dinner. Complimentary entry and transportation to and from the zoo will be provided. Shuttle services from the Resort will run approximately every 15 minutes from 4:30 – 6 p.m.

6:30 – 9:30 p.m.
Celebration Dinner
(Discovery Center at the Brookfield Zoo)
Celebrate Miracles and Milestones with a wild fiesta at the Brookfield Zoo. The evening includes concerts and a laser light show hosted by the Zoo. Trolley service back to the Hilton Oak Brook Hills Resort will be provided approximately every 15 minutes from 8 – 9:30 p.m.

Optional forum activities including research sessions, video story booth, portrait sessions and more are available throughout the day from 12 – 5 p.m. (see “Forum Activities” for more information).


Saturday, Jun 25

8:00 – 10:00 a.m. 
Breakfast buffet for all forum attendees (Ballroom F)

8:30 – 9:15 a.m.
Closing Remarks and Farewell (Ballroom F)
Monogenic Diabetes Team

12:00 p.m.
Hotel Room Check-out

9:30 a.m. – 12 p.m.
Optional Activities for Families

Optional forum activities including research sessions, video story booth, portrait sessions and more are available throughout the day from 9:30 a.m. – 12 p.m. (see “Forum Activities” for more information).

Forum Activities

The following forum activities are available Thursday, June 23 & Friday, June 24 from 12 – 5 p.m. and Saturday, June 25 from 9:30 a.m. – 12 p.m. They are also OPTIONAL and COMPLIMENTARY WITH REGISTRATION unless otherwise noted.

Research Sessions (By Appointment Only)
Research opportunities will be available throughout the forum, including neurodevelopmental/behavioral assessments, mixed meal/protein tolerance tests, continuous glucose monitoring, and food/activity/sleep tracking. If you are interested in learning if you or your child is eligible to participate, please inquire at the Kovler Welcome Desk or email our research team at monogenicdiabetes@uchicago.edu.

Video Story Booth (By Appointment Only)
Since Kovler’s first monogenic family forum in 2010, families and individuals have had the opportunity to share their personal journey with monogenic diabetes on film at the forum. Don’t miss out on the chance to participate in this forum tradition! Make an appointment to share your story as our journey continues. A highlight reel of responses from all families will be compiled and shared with participants after the conference. Families can make their appointments via a sign-up form sent by e-mail in advance or during check-in at the Kovler Welcome Desk.

Portrait session (By Appointment Only)
Capture lifetime memories with professional portraits by Hallie Duesenberg Photography on the beautiful grounds of the Hilton Oak Brook Hills Resort. Photos will be sent to families after the forum. Families can make their appointments via a sign-up form sent by e-mail in advance or during check-in at the Kovler Welcome Desk.

Other Resort Activities (Per Resort Policies)
For your fitness and recreation, the Hilton Oak Brook Hills Resort provides basketball, fitness rooms, a golf course, and indoor and outdoor pools for all of its guests. However, please note that resort guests and forum attendees should supervise children directly in all swimming areas, including all indoor and outdoor pools. There is no lifeguard on duty. The University of Chicago staff, faculty and childcare providers will not be responsible for supervising children in these areas.

Questions? Come to the Kovler Welcome Desk!
Please stop by the Kovler Welcome Desk if you have questions or concerns during the conference. The Kovler Welcome Desk is located in the east foyer of the conference center outside of Ballroom F. The Kovler Welcome Desk will be open for check in and questions during the following times: Thursday, June 23, 10 a.m. – 5 p.m.; Friday, June 24, 7:30 a.m. – 5 p.m.; Saturday, June 25, 8 a.m. – 12 p.m.

If you need to reach someone outside of the Kovler Welcome Desk hours, please e-mail Peggy Hasenauer at peggy.hasenauer@uchospitals.edu.

Travel, Accommodations and Venue

Celebrating Miracles & Milestones: Our Journey Continues is supported by generous gifts, grants and donations through the University of Chicago Medicine Kovler Diabetes Center. The forum, program, most meals, family gift bag, child care, overnight self-parking at the resort, and social events will be provided.

Hotel Accommodations

All Forum events will be held at the Hilton Oak Brook Hills Resort unless otherwise noted. The Hilton Oak Brook Hills Resort will have a room block for the University of Chicago Medicine Kovler Diabetes Center. Rooms are available as a part of the forum for the evenings of Thursday, June 23 and Friday, June 24. A limited number of rooms are also available for the evening of Saturday, June 25.

Special room rate at the Hilton Oak Brook Hills Resort is $129 per night for a double/queen-sized room and $179 per night for a king suite. However, special taxes and fees may apply for unique accommodations. Check-in time is 4 p.m. and check-out time is 12 p.m. Early check-in and late check-out are subject to availability and approval. Please make your hotel reservations early to ensure availability. For more information or to make hotel reservations, click here.

Venue

Located just west of downtown Chicago and nestled into the serene surroundings of Oak Brook, Illinois, the Hilton Oak Brook Hills Resort offers an ideal destination for you and your family’s stay during the forum.

Resort Amenities Include:

  • Spectacular golf course views
  • Championship 18-Hole Willow Crest Golf Course
  • Indoor and outdoor pools and sauna
  • Complimentary on-site parking
  • High speed internet in guest rooms, and on-site full-service business center
  • Fitness center & game room
  • Restaurant, café, grill and lobby bar
  • Easy access to I-88, I-290 and Chicago’s Metra Rail system
  • 20 miles from downtown Chicago
  • 18 miles from O’Hare International Airport and 23 miles from Midway Airport
  • For more information about the Hilton Oak Brook Hills Resort, please visit:
    www.oakbrookhillsresortchicago.com

Complimentary Shuttle Service

Complimentary shuttle service to the surrounding area within a 5-mile radius is provided by the resort but is subject to availability. Arrangements with the resort should be made 24 hours in advance. To make your shuttle arrangements, please call the Hilton Oak Brook Hills Resort at 630-850-5555.

Parking

Complimentary on-site, outdoor parking is available through the Hilton Oak Brook Hills Resort.

Attractions

The Hilton Oak Brook Hills Resort is only a few miles away from the Morton Arboretum, Chicagoland Speedway and the Oak Brook Shopping Center, which features 160 upscale shopping, dining and entertainment options. Dozens of well-known restaurants and casual eateries are nearby and convenient to guests who would like to venture out.

Complimentary shuttle service to the surrounding area within a 5-mile radius is provided by the resort but is subject to availability. Arrangements with the resort should be made 24 hours in advance. To make your shuttle arrangements, please call the Hilton Oak Brook Hills Resort at 630-850-5555. 

Child Care (“Kamp Kovler”) Information

Children of all ages are welcome to attend the forum. If you would like to attend sessions without your children, kids may attend Kamp Kovler, the optional child care sessions that we provide at no additional cost. Kamp Kovler is a fun and educational experience with opportunities to learn origami, attend a fitness bootcamp, create artwork and more! Kamp Kovler activity schedules are posted online and in the forum. We are happy to take care of children who have diabetes as well as those who do not have diabetes.

Kamp Kovler Hours

Kamp Kovler services will be offered in the Medinah Room on the lower level of the conference center on Thursday, June 23 from 1 – 5:45 p.m. and Friday, June 24 from 8:30 a.m. – 12 p.m. and 1 – 4:15 p.m. Parents are welcome to visit Kamp Kovler rooms throughout the day. Kamp Kovler will not be provided Thursday evening, Friday evening, or Saturday, but family-friendly activities will be offered (see: Optional Forum Activities).

Children must be signed in and out of these sessions by their parent or primary caregiver.

Kamp Kovler Team

Kamp Kovler will be managed by our experienced team, including nurses, dietitians, child life specialists, certified diabetes educators and experienced volunteers. Supervision provided by our team will include play time, snack time and organized activities such as board games, coloring, reading, DVDs, etc. Children are also welcome to bring their own toys and personal favorites – these items or toys should be labeled properly. Please note that child care services will NOT include activities or supervision around the indoor and outdoor pool areas. Families are responsible for supervising their children at these areas per hotel policies.

For all Kovler Kamp sessions, the childgiver to child ratios will be 1:1 for children <1 year, 1:2 for children aged 1-2 years, 1:3 for 3-7 years and 1:5 for those >7 years.

Kamp Kovler Policies

Before checking your child into Kamp Kovler, please make sure to familiarize yourself with our following child care guidelines:

  • Communication
    Each child will need to be signed in and out of these sessions by their parent or primary caregiver. Additionally, if parents or primary caregivers are leaving the Hilton Oak Brook Hills Resort building during the forum for any reason during Kamp Kovler hours, please notify Kamp Kovler staff prior to leaving the resort to verify contact information.
  • Research
    With your consent, Kamp Kovler staff may help to escort your child to and from their research sessions.
  • Meals and snacks
    We encourage all parents to eat breakfast and lunch with their children on Thursday and Friday in the main forum space. Gluten-free, low-fat, healthy snacks will be offered to children in the child care room mid-morning and mid-afternoon unless you specify that your child is to have only their own snacks. (A list of exact meal and snack items will be provided to families upon request). We ask that all children with a food allergy wear a special bracelet to identify them.
  • Checking Blood Sugars
    Kamp Kovler staff will ONLY check blood sugars or administer medications on an emergency basis. In all other cases, parents should bring all necessary medications and supplies to the forum and administer blood sugar checks and/or all medications to children directly.
  • Bathroom
    Kamp Kovler staff will contact parents for diaper changes as needed, as this is a service we will not be providing. If staff members have your permission to escort your child to the bathroom, please say so during Kamp Kovler check-in.
  • Personal Items
    Please ensure that all personal toys, books and games are clearly labeled with the child’s name and family name.

Kamp Kovler Experts

Jennifer Kemp Berchtold M.S., CCLS, DT, CPST
Jennifer Kemp Berchtold is back as the Director of Kamp Kovler after serving as Director in 2010 and 2013. Jenny is an experienced Child Life Specialist, Developmental Therapist, and teacher of all ages. She works at her alma mater, Erikson Institute, as adjunct faculty and the program manager for all of the Infant Studies certificate programs. Jenny helps recruit and prepare the next generation of providers for some of life’s most important work — that of working with children.

Elizabeth Noreen
Elizabeth Noreen was a Kamp Kovler volunteer in 2013 and is Assistant Director of Kamp Kovler this summer. Elizabeth just completed her graduate studies in child development with a focus in Child Life and supporting children with medical and developmental differences at Erikson Institute in Chicago.

Have questions about Kamp Kovler?
If you have any questions regarding Kamp Kovler, please contact Jennifer Kemp Berchtold, Director of Child Care at jkempberchtold@erikson.edu.

Photography, Film and Publicity

 

Photography and Film

We will have photographers present at the forum. We will only photograph you and your family with your consent. Release forms will be available upon event check-in at the Kovler Welcome Desk.

Publicity

Newspaper, television, radio and other media representatives may be present and may wish to interview families about monogenic diabetes. Media release forms will be available upon event check-in at the Kovler Welcome Desk.

Faculty and Presenters

Graeme I. Bell, PhD
Kovler Family Distinguished Service
Professor of Medicine and Human Genetics
Director, Diabetes Research and Training Center
The University of Chicago Medicine

Edwin Cook, MD
Professor of Psychiatry
The University of Illinois at Chicago

Tina N. Drossos, PhD
Associate Professor
Psychiatry and Behavioral Neuroscience
The University of Chicago Medicine

Daniela Del Gaudio, PhD, FACMG
Co-Director, Molecular Diagnostic Laboratory
The University of Chicago Medicine

Siri Atma W. Greeley, MD, PhD
Assistant Professor of Pediatrics and Medicine
Section of Adult and Pediatric Endocrinology, Diabetes and Metabolism
Kovler Diabetes Center
The University of Chicago Medicine

Amy Hess-Fischl, MS, RD, LDN, BC-ADM, CDE
Program Coordinator, Teen Transitions
Kovler Diabetes Center
The University of Chicago Medicine

Laurie Jaffe
Leadership Board Member
Kovler Diabetes Center
The University of Chicago Medicine

Amy Knight Johnson, MS, CGC
Senior Laboratory Genetic Counselor
University of Chicago Medicine
Genetic Services Laboratory

Dorit Koren, MD
Assistant Professor of Pediatrics and Medicine
Section of Adult and Pediatric Endocrinology,
Diabetes and Metabolism
Kovler Diabetes Center
The University of Chicago Medicine

Michelle Lemelman, MD
Pediatric Endocrinology Fellow
Kovler Diabetes Center
The University of Chicago Medicine

Lisa Letourneau, MPH, RD, LDN
Research Study Coordinator
The University of Chicago Medicine

Michael E. Msall, MD
Professor of Pediatrics; Section Chief
Developmental and Behavioral Pediatrics
The University of Chicago Medicine

Rochelle N. Naylor, MD
Assistant Professor of Pediatrics and Medicine
Section of Adult and Pediatric Endocrinology,
Diabetes and Metabolism
Kovler Diabetes Center
The University of Chicago Medicine

Louis H. Philipson, MD, PhD, FACP
Professor of Medicine and Pediatrics
Section of Adult and Pediatric Endocrinology,
Diabetes and Metabolism
Director, Kovler Diabetes Center
The University of Chicago Medicine

May Sanyoura, PhD
Post-doctoral Scholar
Kovler Diabetes Center
The University of Chicago Medicine

Megan Scott, PhD
Assistant Professor of Psychiatry
The University of Chicago Medicine

Reshma Shah, MD
Instructor in Pediatrics
Division of Developmental Pediatrics
The University of Illinois at Chicago

Peter Smith, MD, MA
Associate Professor of Pediatrics
The University of Chicago Medicine

Susan Tucker, MD
Pediatric Endocrinology Fellow
Kovler Diabetes Center
The University of Chicago Medicine

Faculty Disclosure

It is the policy of the University of Chicago to ensure balance, independence, objectivity, and scientific rigor in all its individually sponsored or jointly sponsored educational activities. Individuals who are in a position to control the content of this educational activity are required to disclose all relevant financial relationships with any commercial interest related to the subject matter of the educational activity. Mechanisms to ensure that presentations are free from commercial bias are in place. Faculty will also disclose any off-label and/or investigational use of pharmaceuticals or instruments discussed in their presentation. Full disclosure of this information will be published in the activity materials.

Sponsorship

The registration fee by no means covers all expenses associated with the forum. The Kovler Diabetes Center underwrites every family attending the forum by providing meals, educational materials, activities, speakers, and more. However, there are many families who may require additional financial assistance in order to attend the forum. We do not want to turn anyone away.

Our Angel Sponsorship options provide financial assistance to families who might not otherwise be able to attend. Please consider becoming a Kovler Angel to provide funding so all families affected by monogenic diabetes can attend:

  • Miracle Angel: $2,000
    Provide opportunity for two families of four to attend the conference
  • Caring Angel: $1,000
    Provide opportunity for a family of four to attend the conference
  • Giving Angel: $500
    Provide opportunity for a family of two to attend the conference
  • Angel: $250
    Provide opportunity for an individual to attend the conference

We are also happy to create a customized giving opportunity for you or your corporation. For more information, please e-mail us at diabetes@uchospitals.edu or call 773.702.4802. If you would like to select a sponsorship option online, click on the Register button and select “Sponsor” from the drop-down menu. Your support, however big or small, can make a big difference. Thank you in advance for your generosity!

Thanks to all of those who have supported this conference thus far!

Presenting Sponsor
Michael & Laurie Jaffe

Breakthrough Sponsors
Ed Miniat, Inc
Peggy & Thomas Hasenauer
Quest Diagnotics
Schulze & Burch Biscuit Co
Karen & Jim Reid
Eve Tyree
Zellmer Wellness Foundation

Angel Sponsors
Graeme Bell
Cosmopolitan Club of Aurora
Coleen & Connor Huang
Nancy Good
Anni Macht
Cicely & Robert Michalak
Andrew Parkinson
Thomas Parkinson
Monique Parsons
Lynn & Louis Philipson
Amy Pittanaro
Michelle Rago
Lyn & John Ramsey
Ady & Harry Rosenberg
Rotering Family Fund
Lee & Marlene Rubenstein
Wendy Serrino
Jeffrey & Judith Silverman
Walgreens