Celebrating Miracles & Milestones: Journey Continues @Kovler

Celebrating Miracles & Milestones: Our Journey Continues

Date: Thursday, July 25 – Saturday, July 27, 2019
Location: Hilton Oak Brook Hills Resort – Oak Brook, Illinois

Thank you for your interest in our 2019 Monogenic Diabetes Family Forum, Celebrating Miracles & Milestones: Our Journey Continues. We look forward to welcoming you. Here you will find more information regarding the forum, including registration, agenda, child care information and any updates to the program. We encourage you to keep this page bookmarked for your future reference!

Registration

Register for the forum here!

Agenda

Forum Activities

Travel, Hotel Accommodations and Venue

Attractions

Child Care Information

Photography, Film and Publicity

Faculty and Presenters

Faculty Disclosure

Sponsorship

Thank You

Registration

The family forum fee is $95 per individual or $200 per family. For early registration before April 30, the family forum fee is $85 per individual or $180 per family. A family includes two or more individuals. All attendees must pay online at the time of registration.

The registration fee includes:

  • Participation in two-day forum with leading international experts
  • Forum materials and activities, research sessions, and more (see “Forum Activities”)
  • Most forum meals
  • Celebration dinner
  • Complimentary self-park
  • Complimentary child care

If your family needs to make alternative payment arrangements or requires financial assistance, please contact Peggy Hasenauer directly at 773-834-4789 or e-mail peggy.hasenauer@uchospitals.edu to discuss confidentially.

Forum Activities

Note: All of the following activities are optional and complimentary with registration unless otherwise specified. 

Family Hospitality Lounge
Located in the Medinah Room, the family hospitality lounge will be available to attendees throughout the forum. Complimentary light refreshments, including coffee and tea, will be provided in the lounge.

Research Session (by appointment only)

Research opportunities will be available throughout the forum. If you are interested in learning if you or your child is eligible to participate, please contact Lisa Letourneau, research manager, at 773-702-1081 or email our research team at monogenicdiabetes@uchicago.edu.

Other Resort Activities (per resort policies)
For your fitness and recreation, the Hilton Oak Brook Hills Resort provides basketball, fitness rooms, a golf course, and indoor and outdoor pools for all its guests. However, please note that resort guests and forum attendees should supervise children directly in all swimming areas, including all indoor and outdoor pools. There is no lifeguard on duty. The University of Chicago staff, faculty, and child care providers will not be responsible for supervising children in these areas.

Activity Hours

Thursday, July 25 & Friday, July 26: 12-5 p.m.

Saturday, July 27: 9:30 a.m.- 12:00 p.m.

If you need to reach someone outside of the Kovler Welcome Desk hours, please e-mail Peggy Hasenauer at peggy.hasenauer@uchospitals.edu.

Agenda


Thursday, July 25

11:00 a.m.
Conference Check-in begins
(Kovler Welcome Desk located at the east foyer of the conference center)

1:00 p.m.
Child Care Check-in (optional)

1:30 p.m. 
Welcome and Team Introduction
Louis H. Philipson, MD, PhD, FACP

1:45 p.m.
Where Are We Now? 

Siri Atma W. Greeley, MD, PhD
Rochelle N. Naylor, MD
Louis H. Philipson, MD, PhD, FACP

2:30 – 3:15 p.m.
Breakout Session #1

Attendees may attend one of two breakout sessions during this block:
Details coming soon

3:20 – 4:05 p.m.
Breakout Session #2

Attendees may attend one of two breakout sessions during this block:
Details coming soon

4:15 – 5:30 p.m.
Attendee Choice

  • Gene Jam: Meet conference attendees who have the same type of monogenic diabetes as you!
  • Enjoy free time with your family.

6:00 – 8:00 p.m.
Visit the Oakbrook Center for a variety of restaurants! 


Friday, July 26

7:30 – 8:30 a.m. 
Breakfast buffet for all forum attendees, children, and families

8:30 a.m. 
Child Care Check-In 

9:00 a.m.
Opening Remarks
Louis H. Philipson, MD, PhD, FACP

9:15 – 9:45 a.m.
The Story Continues 
Graeme I. Bell, PhD

9:45 – 10:15 a.m.
Genetics 

10:15 a.m. – 10:30 a.m.
Break

10:30 – 11:10 a.m.
Breakout Session #1
Attendees may attend one of the five breakout sessions during this block:
Details coming soon

11:15 – 11:55 a.m.
Breakout Session #2

Attendees may attend one of the five breakout sessions during this block:
Details coming soon

12:00 – 1:00 p.m.
Lunch buffet for all conference attendees, children and families

1:00 – 2:00 p.m.
Breakout session #3                                                                                        

Attendees may attend one of the five breakout sessions during this block:
Details coming soon

2:00 – 3:00 p.m.
Breakout Session #4

Attendees may attend one of the five breakout sessions during this block:
Details coming soon

3:00 – 4:00 p.m.
Breakout Session #5

Attendees may attend one of the five breakout sessions during this block:
Details coming soon

4:00 – 6:00pm
Attendee Choice

  • Gene Jam: Meet conference attendees who have the same type of monogenic diabetes as you!
  • Informal Q&A with Kovler team
  • Research appointments or enjoy free time!

6:00 – 8:00 p.m.
Celebration Dinner
(Marquis Tent)


Saturday, July 27

8:00 – 10:00 a.m. 
Breakfast buffet for all forum attendees 

8:30 – 9:15 a.m.
Closing Remarks and Farewell 

12:00 p.m.
Hotel Room Check-out

9:30 a.m. – 12:00 p.m.
Scheduled Sessions with Doctors

Our team physicians will be available on Saturday morning to speak with families to answer any additional questions. In order to accommodate everyone, these will be 15-minute scheduled meetings. If you are interested in scheduling a meeting, please email Lisa Letourneau, research manager, before July 1st at monogenicdiabetes@uchicago.edu

Travel, Accommodations and Venue

Celebrating Miracles & Milestones: Our Journey Continues is supported by generous gifts, grants, and donations through the University of Chicago Medicine Kovler Diabetes Center. The forum, program, activities, most meals, family gift bag, child care, overnight self-parking at the resort, and social events will be provided.

Registration 

The family forum fee is $95 per individual or $200 per family. For early registration before April 30, the family forum fee is $85 per individual or $180 per family. A family includes two or more individuals. All attendees must pay online at the time of registration.

If your family needs to make alternative payment arrangements or requires financial assistance, please contact Peggy Hasenauer at 773-834-4789 or e-mail peggy.hasenauer@uchospitals.edu to discuss confidentially.

Hotel Accommodations

The Hilton Oak Brook Hills Resort will have a block of rooms reserved for the University of Chicago Medicine Kovler Diabetes Center. Rooms are available as a part of the forum for the evenings of Thursday, July 25 and Friday, July 26. A limited number of rooms are also available for the evening of Saturday, July 27.

The special room rate at the Hilton Oak Brook Hills Resort is $134 per night for a double/queen-sized room and $184 per night for a king suite. Additional taxes and fees may apply. Check-in time is 4 p.m. and check-out time is 12 p.m. Early check-in and late check-out are subject to availability and approval.

Please make your hotel reservation early to ensure availability. To reserve, call 1-630-850-5555 and ask for a room(s) in our block under the group name “UCCM – The University of Chicago.”

Venue

Located just west of downtown Chicago and nestled into the serene surroundings of Oak Brook, Illinois, the Hilton Oak Brook Hills Resort offers an ideal destination for you and your family’s stay during the forum.

Resort Amenities Include:

The Hilton Oak Brook Hills Resort offers a diverse array of amenities, including:

  • Spectacular golf course views
  • Championship 18-hole Willow Crest Golf Course
  • Indoor and outdoor pools and sauna
  • Complimentary on-site parking
  • High speed internet in guest rooms, and on-site full-service business center
  • Fitness center & game room
  • Restaurant, cafe, grill, and lobby bar
  • Easy access to I-88, I-290, and Chicago’s Metra rail system
  • 20 miles from downtown Chicago
  • 18 miles from O’Hare International Airport and 23 miles from Midway Airport
  • For more information about the Hilton Oak Brook Hills Resort, please visit:
    www.oakbrookhillsresortchicago.com

Parking

Complimentary on-site, outdoor parking is available through the Hilton Oak Brook Hills Resort.

Attractions

The Hilton Oak Brook Hills Resort is only a few miles from the Morton Arboretum, Chicagoland Speedway, and the Oak Brook Shopping Center, which features 160 upscale shopping, dining, and entertainment options. Dozens of well-known restaurants and casual eateries are nearby and convenient to guests who would like to venture out.

Complimentary shuttle service to the surrounding area within a 5-mile radius is provided by the resort but is subject to availability. Arrangements with the resort should be made 24 hours in advance. To make your shuttle arrangements, please call the Hilton Oak Brook Hills Resort at 630-850-5555.

Child Care Information

Children of all ages are welcome to attend the forum. If you would like to attend sessions without your children, you may wish to use the optional child care sessions that we provide at no cost. We are happy to take care of children who have diabetes as well as those who do not.

Child care sessions will be managed by our experienced team, including nurses, dietitians, child life specialists, certified diabetes educators, and experienced volunteers. Supervision provided by our team will include play time, snack time, and organized activities such as board games, coloring, reading, DVDs, etc. Children are also welcome to bring their own toys and personal favorites. Be sure to label your items or toys properly. Child care services will NOT include activities or supervision around the indoor and outdoor pool areas. Families must supervise their children in these areas per hotel policies.

For all children care sessions, the child giver to child ratios will be 1:1 for children under 1 year, 1:2 for children aged 1-2 years, 1:3 for 3-7 years and 1:5 for those over 7 years. Each family will need to complete the child care registration form. In addition, each child will need to be signed in and out of these sessions by their parent or primary caregiver. After completing and submitting the online child care form, you will receive a child care consent form in addition to film, photography, and media consent forms. If you have any questions regarding child care, please contact Peggy Hasenauer at diabetes@uchospitals.edu or by calling 773-834-4789

Important Points for Families

  • Child care services will be offered on Thursday, July 25 from 1 to 6 p.m. and Friday, July 26 from 8 a.m. to 4:30 p.m. Child care services will not be provided on Thursday evening, Friday evening, or Saturday. Parents are welcome to visit the child care room throughout the day.
  • If parents or primary caregivers are leaving the Hilton Oak Brook Hills Resort building during the forum for any reason during child care hours, please notify child care staff prior to leaving the resort to verify contact information.
  • Please bring all important contact information with you, including names and phone numbers of your primary care physician, pediatrician, family practice physician, and your local pharmacy.
  • We encourage all parents to eat breakfast and lunch with their children on Thursday and Friday in the main forum space. Gluten-free, low-fat, healthy snacks will be offered to children in the child care room mid-morning and mid-afternoon unless you specify that your child is to have only their own snacks. (Exact meal and snack menus will be provided to families upon request.)
  • We will ONLY check blood sugars or administer medications on an emergency basis. In all other cases, parents should bring all necessary medications and supplies to the forum and administer blood sugar checks and/or all medications to children directly.
  • We will contact parents for diaper changes as needed, as this service will not be provided. If we have your permission to escort your child to the bathroom, please include this on the online child care registration fields.
  • Child care will not be provided Thursday evening, Friday evening or Saturday, but family-friendly activities will be offered. See page 5 for details.
  • Please ensure that all personal toys, books, and games are clearly labeled with the child’s name and family name.
  • We will ask that all children with a food allergy wear a special bracelet we design for them.

Photography, Film and Publicity

Photography and Film

We will have a photographer present at the forum. We will only photograph you and your family with your consent. Additional release forms will be sent separately upon registration or at the Forum Registration desk.

Publicity

Newspaper, television, radio, and other media representatives may be present and may wish to interview families about monogenic diabetes. Please indicate at the time of registration (at kovlerdiabetescenter.org/OurJourney) if you would like to participate. Media release forms will be sent separately upon registration.

Faculty and Presenters

Graeme I. Bell, PhD
Kovler Family Distinguished Service
Professor of Medicine and Human Genetics
Director, Diabetes Research and Training Center
The University of Chicago Medicine

Edwin Cook, MD
Professor of Psychiatry
The University of Illinois at Chicago

Gokhan Dalgin, PhD 

Staff Scientist
Kovler Diabetes Center
The University of Chicago Medicine

Tina N. Drossos, PhD
Associate Professor
Psychiatry and Behavioral Neuroscience
The University of Chicago Medicine

Daniela Del Gaudio, PhD, FACMG
Co-Director, Molecular Diagnostic Laboratory
The University of Chicago Medicine

Siri Atma W. Greeley, MD, PhD
Assistant Professor of Pediatrics and Medicine
Section of Adult and Pediatric Endocrinology, Diabetes and Metabolism
Kovler Diabetes Center
The University of Chicago Medicine

Anastasia Harris, MPH    

Research Coordinator
Kovler Diabetes Center
The University of Chicago Medicine

Amy Hess-Fischl, MS, RD, LDN, BC-ADM, CDE
Program Coordinator, Teen Transitions
Kovler Diabetes Center
The University of Chicago Medicine

Laurie Jaffe
Founding Leadership Board Member
Kovler Diabetes Center
The University of Chicago Medicine

Amy Knight Johnson, MS, CGC
Senior Laboratory Genetic Counselor
University of Chicago Medicine
Genetic Services Laboratory

Balamurugan Kandasamy, PhD
Post-doctoral Scholar
Kovler Diabetes Center
The University of Chicago Medicine

Lisa Letourneau, MPH, RD, LDN
Research Manager
The University of Chicago Medicine

Michael E. Msall, MD
Professor of Pediatrics; Section Chief
Developmental and Behavioral Pediatrics
The University of Chicago Medicine

Rochelle N. Naylor, MD
Assistant Professor of Pediatrics and Medicine
Section of Adult and Pediatric Endocrinology,
Diabetes and Metabolism
Kovler Diabetes Center
The University of Chicago Medicine

Louis H. Philipson, MD, PhD, FACP
Professor of Medicine and Pediatrics
Section of Adult and Pediatric Endocrinology,
Diabetes and Metabolism
Director, Kovler Diabetes Center
The University of Chicago Medicine

Megan Scott, PhD
Assistant Professor of Psychiatry
The University of Chicago Medicine

Planning Committee

  1. Rabia Ali, MSN, RN, CDE

  2. Graeme I. Bell, PhD

  3. Siri Atma W. Greeley, MD, PhD

  4. Sue Hagberg

  5. Anastasia Harris, MPH

  6. Peggy Hasenauer, MS, RN

  7. Brad Joutras, MBA, CFRE

  8. Laurie Jaffe

  9. Lisa Letourneau, MPH, RD, LDN

  10. Rachel Lieberman

  11. Rochelle Naylor, MD

  12. Soo-Young Park, PhD

  13. Gladys Paz

  14. Louis H. Philipson, MD, PhD, FACP

  15. Honggang Ye, PhD

  16. Karen Wu

Faculty Disclosure

It is the policy of the University of Chicago to ensure balance, independence, objectivity, and scientific rigor in all its individually sponsored or jointly sponsored educational activities. Individuals who are in a position to control the content of this educational activity are required to disclose all relevant financial relationships with any commercial interest related to the subject matter of the educational activity. Mechanisms to ensure that presentations are free from commercial bias are in place. Faculty will also disclose any off-label and/or investigational use of pharmaceuticals or instruments discussed in their presentation. Full disclosure of this information will be published in the activity materials.

BE INSPIRED. Be an angel.

The registration fee by no means covers all expenses associated with the forum. The Kovler Diabetes Center underwrites every family attending the forum by providing meals, educational materials, activities, speakers, and more. However, there are many families who may require additional financial assistance in order to attend the forum. We do not want to turn anyone away.

Please consider becoming a Kovler Angel to providing funding so all families can attend. Your support, however big or small, can make a big difference. More information about various support opportunities are available at kovlerdiabetescenter.org/OurJourney. For any other questions or to get involved, please contact us at 773-702-8718 or email Peggy.hasenauer@uchospitals.edu

Thanks to all of those who have supported this conference thus far!