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2013 Monogenic Diabetes Family Forum Registration


Monogenic Diabetes Conference

Description:

Welcome! This is the full registration for the upcoming 2013 Monogenic Diabetes Family Forum! NOTE: Some of you may have already pre-registered, which allowed us to properly plan and update contact information for your full online registration.

Please take a moment to fill out the form below. We have included 4 additional fields for children. If you are not bringing children, you may skip that section.

After filling in the information, you will be brought to a Paypal payment window to process your $75 (per family) registration fee. Upon payment, you will be registered for the 2013 Monogenic Family Forum. You will be sent a confirmation email that will include a link to make hotel reservations if you had not already made them while pre-registering. If you have any questions, please contact Peggy Hasenauer at diabetes@uchospitals.edu. Always feel free to visit this site for full schedule and more. We are excited to see you all in July!

We are sorry but registration for this event is now closed.

Please contact us if you would like to know if spaces are still available.

CLICK HERE to download the full 2013 Monogenic Diabetes Family Forum Invitation.

Wednesday, July 17, 2013

5:30-7:30 pm
Conference Check-in and Registration


5:30-7:30 pm
“Welcome to Chicago“ Reception
Meet other attendees and enjoy a light dinner buffet.

Thursday, July 18, 2013

7:00 am
Conference Check-in


7:30 – 8:30 am
Breakfast buffet for all conference attendees, children and families


8:30 am
Child Care Check-In


9:00 – 9:15 am
Welcome/Opening Remarks/Where Are We Now?
Louis H. Philipson, MD, PhD, FACP


9:15 – 10:00 am
Using Science to Improve Clinical Care in Diabetes
Andrew T. Hattersley FRS, DM, FRCP


10:00 – 10:30
Break


10:30 – 11:30 am
Press Conference
Illinois Governor Pat Quinn and House Republican Leader Tom Cross


11:30 – 12:00 pm
Coping and Stress: A Panel Discussion
Edwin Cook, MD
Tina Drossos, PhD
Michael Msall, MD
John Rolland, MD
Warren Rosen, PhD, PC


12:00 – 1:00 pm
Lunch buffet for all conference attendees, children and families

1:00 – 2:00 pm
Breakout Session One
Attend ONE of the following:

Medication Management
Rochelle N. Naylor, MD
Siri Atma W. Greeley, MD, PhD

Nutrition and Exercise
Julia Socke, RD, LDN, CDE

Resilience: Everyday Family Management
Edwin Cook, MD
Tina Drossos, PhD
John Rolland, MD
Warren Rosen, PhD, PC

2:00 – 3:00pm
Breakout Session Two
Attend ONE of the following:

Medication Management
Rochelle N. Naylor, MD
Siri Atma W. Greeley, MD, PhD

Resilience: Everyday Family Management
Edwin Cook, MD
Tina Drossos, PhD
John Rolland, MD
Warren Rosen, PhD, PC

3:00 – 4:00 pm
Breakout Session Three
Attend ONE of the following:

MODY Q & A Panel
Presented by Kovler Physicians
and those living with MODY

Neonatal Q & A Panel
Presented by Kovler Physicians
and those living with neonatal diabetes

Legal and Insurance Issues
Edward Kraus, Esq

4:00 pm
Thursday Session Adjourns
Child Care Session Closes


5:00 – 9:00 pm
“Enjoy Chicago“ Night
Individuals and families will receive a complimentary gift card from Lettuce Entertain You restaurants for a fun night out on the town! Free child care options will be available.


5:00 – 9:00 pm
“Kids night out!” (Located at the Marriott)
Children can enjoy pizza and movie night.

Friday, July 19, 2013

7:30 – 8:30 am
Breakfast buffet for all conference attendees, children and families


8:30 am
Child Care Check-In


9:00 am
Opening Remarks
Graeme Bell, PhD with Lilly Jaffe


9:15 am
First Glimpse – Monogenic Diabetes Documentary


9:30 am
The Story Continues: Discovery of the K-ATP Channel
Frances M. Ashcroft, FRS, PhD


10:30 am
Break


10:45 – 12:00 pm
What’s Next? – A Panel Discussion
Frances M. Ashcroft, FRS, PhD
Graeme I. Bell, PhD
Andrew T. Hattersley FRS, DM, FRCP
Louis H. Philipson, MD, PhD, FACP


12:00 – 1:00 pm
Lunch buffet for all conference attendees, children and families


1:00 – 2:00 pm
Breakout Session One
Attend ONE of the following:

Developmental and Educational Needs
Michael Msall, MD

Sleep Concerns Related to Monogenic Diabetes
Dorit Koren, MD

Tools and Technologies
Amy Hess-Fischl, MS, RD, LDN, BC-ADM, CDE

2:00 – 3:00 pm
Breakout Session Two
Attend ONE of the following:

Developmental and Educational Needs
Michael Msall, MD

Sleep Concerns Related to Monogenic Diabetes
Dorit Koren, MD

Tools and Technologies
Amy Hess-Fischl, MS, RD, LDN, BC-ADM, CDE

3:00 pm
Friday Session Adjourns


3:00 – 4:00 pm
MODY and Neonatal Lounges Open (optional)


4:00 pm
Child Care Session Closes


4:00 – 5:30 pm
“We’re Going to the Zoo – How About You?”
Enjoy an evening at the Lincoln Park Zoo on your own before the Celebration Dinner. Complimentary entry into the zoo is provided, as well as transportation to and from the hotel. The complimentary shuttle from the hotel to the zoo will be available from 4:00 pm – 5:30 pm.


6:00 – 8:30 pm
Celebration Dinner at Wild Things Café at Lincoln Park Zoo
Transportation back to the Marriott Downtown Magnificent Mile hotel will be provided beginning at 8 pm.

Saturday, July 20, 2013

6:30 – 11:00 am
Breakfast on own at the Harvest Restaurant, located on the 2nd floor of the Marriott. Vouchers will be provided in advance at Conference Registration desk.


8:00 – 3:00 pm
CME and Professional Medical Education Conference is
optional for Family Forum attendee.
CLICK HERE to download the 2013 CME and Monogenic Diabetes Professional Education Conference Invite.
NOTE: Children are not permitted to attend.


9:00 – 12:00 pm
Optional Activities for Families (no childcare provided)
• Q & A Panels
• Video Diary Session
• Neuropsychological Assessments (by appointment only)

NOTE: Child care will not be provided.


Celebrating Miracles & Milestones is supported by generous gifts, grants and donations through the University of Chicago Kovler Diabetes Center. The conference, program, most meals, family gift bag, child care, overnight self-parking at hotel, social events and one nights’ hotel accommodations will be provided.

Registration

The Family Forum Fee is $75 per individual family. All attendees are encouraged to pay online at the time of registration. If your family needs to make alternative payment arrangements or requires financial assistance, please contact Peggy Hasenauer directly at (773) 412-4171 to discuss confidentially.

Hotel Accommodations

The University of Chicago Kovler Diabetes center will cover the cost of accommodations for families coming from out of town for the night of Wednesday, July 17, 2013 at the Marriott Downtown Magnificent Mile For overnight hotel accommodations for Thursday, July 18, 2013 and Friday, July 19, 2013, the Kovler Diabetes Center has reserved a block of hotel rooms at the Marriott Downtown Magnificent Mile with a special group rate of $159 per night (standard room rate) and will be the responsibility of each family attending the conference.
CLICK HERE TO BOOK YOUR HOTEL (please be sure to register as well).

Any and all incidental charges, tipping, room service and other hotel room services throughout your stay in Chicago are also the responsibility of forum attendees. Guests will be asked for a credit card upon arrival for incidentals.

Venue

540 North Michigan Avenue
(Driveway entrance on 541 North Rush Street)
Chicago, Illinois 60611
Main Phone: (312) 836-0100 or (800) 228-9290
www.Marriott.com

Encounter a renowned Chicago hotel combining the epitome of luxury and convenience at the Chicago Marriott Downtown Magnificent Mile, a Windy City landmark. Situated amongst world-class shopping and dining, this Chicago hotel is in walking distance of top attractions, including Navy Pier, American Girl Place, Shedd Aquarium, Millennium Park and the theater and museum districts. Enjoy stylish rooms with flat screen TVs, deluxe bedding and ergonomic furnishings. Depart from the ordinary and discover a Windy City hotel destination providing incomparable service and unprecedented style at the Chicago Marriott Downtown Magnificent Mile.

Parking

If you plan to drive from your home to Chicago, valet parking is available during the duration of the Conference July 17 – 20. for a fee and self-park is included at no cost. However, once you have parked your vehicle you may not leave the garage, as the voucher does not include in-and-out privileges.

We do not encourage families to rent a car if flying to Chicago, as public transportation and taxicabs are readily available to and from the Chicago Marriott Downtown Magnificent Mile. Taxicabs and public transportation are to be covered by all attendees independently. The average cost of a taxicab from Midway or O’Hare to the Chicago Marriott Downtown Magnificent Mile is approximately $40 USD.

Faculty and Presenters

Frances M. Ashcroft, FRS, PhD
Royal Society GlaxoSmithKline
Research Professor, Department of Physiology,
Anatomy and Genetics, Oxford, UK

Graeme I. Bell, PhD
Louis Block Distinguished Service Professor
of Medicine and Human Genetics
Director, Diabetes Research and
Training Center (DRTC)
The University of Chicago

Edwin Cook, MD
Professor of Psychiatry
The University of Illinois at Chicago

Siri Atma W. Greeley, MD, PhD
Instructor of Pediatrics
The University of Chicago

David Gozal, MD
Professor of Pediatrics
Chair, Department of Pediatrics
The University of Chicago

Andrew T. Hattersley FRS, DM, FRCP
Professor of Molecular Medicine
Peninsula Medical School, Exeter,
United Kingdom

Edward Kraus, Esq
Clinical Professor of Law
IIT Chicago-Kent College of Law
Illinois Institute of Technology

Louis H. Philipson, MD, PhD, FACP
Professor of Medicine and Pediatrics
Director, The University of Chicago
Kovler Diabetes Center

Michael Msall, MD
Professor of Pediatrics
Section Chief, Developmental and
Behavioral Pediatrics
The University of Chicago

Rochelle N. Naylor, MD
Instructor of Pediatrics and Medicine
The University of Chicago

John Rolland, MD
Clinical Professor of Psychiatry,
The University of Chicago
Co-Founder, Chicago Center for
Family Health

Warren Rosen, PhD, PC
Neuropsychology

Planning Committee

Terry Becker
Charles Bell
Graeme I. Bell, PhD
Kristy Buhr
Sean Campbell
David Carmody MD
Jazzmyne Dickens
Amy Franze
Siri Atma W. Greeley, MD, PhD
Jamie Haas
Peggy Hasenauer, MS, RN
Margarita Heinzel
Carla Henault
Jessica Hwang MD
Michael and Laurie Jaffe
Rachel Lieberman
Rochelle N. Naylor, MD
Daphne Ortiz
Louis H. Philipson, MD, PhD, FACP
Sharon Syc, PhD

Video Diary

A video diary room will be available at the conference where you may film you or your family’s personal journey with Monogenic/Neonatal Diabetes. We hope that you will contribute to the video diary, but this opportunity is entirely voluntary. Video diary appointments can be made at the Kovler concierge desk during the Family Forum. Filming will take place in a private setting on the fourth floor of the Chicago Marriott. We will schedule sessions with all families interested in participating.

Photography and Film

We would like to photograph and film some individuals attending particular parts of the meeting. We will only include you and your family if you are happy to take part. We are thrilled to welcome a documentary filmmaker at the meeting, who will film some of the event for a documentary about Monogenic Diabetes.

Publicity

Newspaper, television, radio and other media representatives may be present and may wish to interview families about Monogenic Diabetes and the transfer from insulin to oral medication. Media release forms will be available at event check-in.

Children of all ages are welcome to attend the conference. If you would like to attend sessions without your children, you may wish to use the optional child care sessions that we are providing at no cost. We are happy to take care of children who have diabetes as well as those who do not have diabetes.

Child care sessions will be managed by our experienced team, including nurses, dieticians, child life specialists, certified diabetes educators and experienced volunteers. Supervision provided by our team will include play time, snack time, and organized activities such as board games, coloring, reading, DVDs, etc. Children are also welcome to bring their own toys and personal favorites. Be sure to label your items or toys properly.

For all child care sessions, the caregiver to child ratios will be: 1:1 for children < 1 year, 1:2 for children aged 1 – 2 years, 1:3 for 3 –7 years and 1:5 for those > 7 years. Each family will need to complete the child care registration form. In addition, each child will need to be signed in and out of these sessions by his/her parent or primary caregiver. After completing and submitting the online child care form, you will receive a child care consent form in addition to film, photography and media consent forms.
If you have any questions regarding child care, please contact Peggy Hasenauer at
Diabetes@UChospitals.edu or by calling 773.834.4789.

Important Points for Families

  • Child care services will be offered on Thursday, July 18 from 8:30 am- 9:00 pm and on Friday, July 19 from 8:30 am- 4 pm.• The child care room is located on the third floor of the Chicago Marriott, just down the hall from the main conference space. Parents are welcome to visit the child care room throughout the day.• If parents or primary caregivers are leaving the Chicago Marriott building during the conference for any reason during child care hours, please notify child care staff prior to leaving the Chicago Marriott and verify contact information.
  • Please bring all important contact information with you, including names and phone numbers of your primary care physician, pediatrician, family practice physician and your local pharmacy.
  • We encourage all parents to eat breakfast and lunch with their children on Thursday and Friday in the main conference space. Gluten-free, low-fat, healthy snacks will be offered to children in the child care room mid-morning and mid-afternoon unless you specify that your child have his/her own snacks. (Exact meal and snack menus will be provided to families upon request.)
  • We will ONLY check blood sugars or administer medications on an emergency basis. In all other cases, parents should bring all necessary medications and supplies to the conference and administer blood sugar checks and/or all medications to children directly.
  • We will contact parents for diaper changes as needed, as this is a service we will not be providing. If we have your permission to escort your child to the bathroom, please include this on the online child care registration fields.
  • Child care will not be provided Wednesday or Friday evening, but family-friendly activities will be offered. Complimentary child care will be available on Thursday evening.
  • Please ensure that all personal toys, books and games are clearly labeled with the child’s name and family name.

Lettuce Entertain You Restaurants

1 Big Bowl
2 Hub 51
3 Joe’s Seafood, Prime Steak
& Stone Crab
4 M Burger
5 Maggiano’s Little Italy

6 Chicago Marriott
7 Nacional 27
8 Osteria Via Stato
9 Paris Club
10 Pizzera Via Stato
11 Petterino’s
12 RPM Italian
13 Scoozi
14 Shaw’s Crab House
15 TRU
16 Water Tower Place
• Foodlife / Foodease
• Mity Nice
• Wow Bao
17 Wildfire

Lettuce Entertain You Attractions

1 Navy Pier
2 American Girl Place
3 Millennium Park
4 Field Museum Chicago
5 Shedd Aquarium
6 Adler Planetarium

Family Forum Sponsors

CME Sponsors